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February 2010

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Novartis tells cystic fibrosis stories

25/02/10 permalink Novartis has launched a new disease awareness campaign for cystic fibrosis that blurs the lines between fact and fiction.

Its figurehead is ‘Christopher Morgan’, a fictional character Novartis has created to tell a story that's based on the experiences of real people with cystic fibrosis. (Read More.)

Searching for clinical trials

23/02/10 permalink A new clinical trials search and referral engine has launched to help patients who are considering taking part in a trial to find information.

London-based TrialReach, which went live last week, has details of more than 70,000 clinical trials and intends to include every trial authorised and regulated by health authorities anywhere in the world. (Read More.)

The MHRA is a late guest at the information party

12/02/10 permalink The MHRA is considering putting its database of patient information leaflets (PILs) and Summaries of Product Characteristics (SPCs) online and seeking views about such a move.

It’s an interesting move from the regulator, which is to be applauded for its plans to make accurate information about medicines more widely available to the public, but the MHRA is coming rather late to the party here. (Read More.)

UCB’s online epilepsy community

08/02/10 permalink UCB has launched an online community for US epilepsy patients to record ‘real-world’ experiences of the condition.

In addition to providing disease information the company hopes its partnership with PatientsLikeMe will also improve drug safety and ultimately lead to advances in epilepsy treatments. (Read More.)

New EMA website previewed

03/02/10 permalink The European Medicines Agency is preparing to overhaul its website to make it easier for users to get information.

This will be cause for celebration for anyone who has found themselves lost within the labyrinthine turns of its current online home. (Read More.)

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